There is a fire lit inside of me and I am blazing the trials making Jonah’s life as normal as possible when it comes to food. I realized two crucial things this week through his Evaluation for Occupational Therapy and Allergy appointments…no, make that three things: 1) My little boy is seriously a champ, 2) He has some real food aversions from bad experiences and associations with food thanks to all of the allergies, reflux, and anaphylactic responses, and 3) he has a lot stacked against him with his new, updated, and revised list of food allergies diagnosed today.
What’s the updated list you ask?! I am writing them here, posting them on the fridge, and handing them out to family because, frankly I can’t remember them all of the top of my head:
- Stone Fruits (mango, peach, plum, etc.)
* indicates a strong enough reaction to elicit an anaphylactic response (banana is one we experienced first hand last week)
We’re hopeful he will grow out of many of these, although the strong allergens may end up being lifelong issues. Only time will tell as he is old enough to do challenge tests to see at a later time.
As his Mama, I want him to have as many choices as he can. I desire for him to begin to have a fun, explorative, and healthy relationship with food despite his rough start. I want him to thrive, grow, and find joy in the things that he can eat without growing up feeling like he is missing out.
I am coming to a point more and more in my moments of desperation figuring out all the puzzle pieces to this little man that my children belong to the Lord and I truly have no choice but to surrender it all. My kids have been given to us to care for and God has chosen us to be the ones to tend to their needs. Whatever they are, or how complicated they are, they are ours for a reason. Even if I don’t see the end.
I am so thankful for so many reminding me this past week since his scary trip to the ER that we are enough for our Jonah. I feel completely inadequate at some point every day.
It feels like swimming in the middle of the ocean at night time knowing there are sharks wading the waters as you swim. But…
Like I said, he is a champ. And Sadie is an amazing cheerleader for her brother. TJ is a great encourager.We’ve got this.
Here’s what we’re eating this week:
- Hearty Vegetable Stew
- Sweet Corn Polenta & Broccoli Pesto, Lemon Steamed Green Beans
- GF Lentil Burritos & Roasted Veggies
- Garlic & Meyer Lemon GF Pasta
- Mexican Chicken Stew